NHGRI/NCI survey on genomics education

The National Human Genome Research Institute (NHGRI), who are supportive of PharmGKB and CPIC, have teamed up with the National Cancer Institute (NCI) to survey research and healthcare professionals about genomics education. The results of this survey will help to determine the resource and training priorities for future genomics education.

PharmGKB and CPIC are both actively working on pharmacogenomic education initiatives and we encourage everyone working in pharmacogenomics to complete the survey. This will highlight the importance of pharmacogenomics in future genomics education.

The survey takes approximately 10 minutes to complete and is tailored to different roles in both research and healthcare. The questions aim to evaluate respondents’ knowledge of genomics and learning needs. It will also help to identify barriers to accessing genomics education as well as preferred training methods.

The survey is open now and can be accessed at https://www.surveymonkey.com/r/GenomicEducation until September 15. All responses are anonymous and the results will be presented at the NHGRI meeting on September 25-26.

PharmGKB Demo at U-PGx Summer School

PharmGKB recently held a demonstration of the PharmGKB website as part of the U-PGx Summer School in Bonn, Germany. Scientists, clinicians and pharmacists attending the summer school heard from Dr. Rachel Huddart, one of our Scientific Curators, and were introduced to the various types of information found on the PharmGKB website; from Dosing Guidelines to Pathways and Clinical Annotations. Information from PharmGKB formed an important of the participants’ project work later on in the summer school.

The U-PGx summer school group sees PharmGKB in action

 

This was a remote demonstration, with Rachel presenting at the summer school online from our Stanford offices. If you are interested in including a demonstration of the PharmGKB website at your pharmacogenomics event, please get in touch with us at feedback@pharmgkb.org.

Changes to the PharmGKB data licensing, downloads and user accounts

PharmGKB is changing its licensing policy in order to simplify access to files containing annotations and relationships. All of PharmGKB, including these files, are now licensed under the Creative Commons Attribution-ShareAlike 4.0 International License. Users who download or use PharmGKB annotations, knowledge, files, images or screen shots agree to the license requirements, including:

1. Attribution: You must give appropriate credit to PharmGKB, provide a link to this license, and indicate if changes were made. You may do so in any reasonable manner, but not in any way that suggests PharmGKB endorses you or approves of your use.
2. ShareAlike: If you alter, amend, reuse or otherwise change PharmGKB data you agree that if you distribute such product, all recipients shall first agree to be subject to this license. Proof of such agreement shall be made available to PharmGKB. Under no circumstances can PharmGKB data be sold for other's private or commercial use.

More information can be found in the Data Usage Policy.

Users no longer need a PharmGKB account to download relationship or annotation files, nor do they need to fill out a request with detailed information about who they are or how they will use the information. However, we would appreciate it if users would fill out our survey when they download data to help us understand who our users are and what type(s) of information are useful to them so that we may continue to be responsive to user needs.

Another change to PharmGKB is that variant and clinical annotations are viewable on the website without logging in. In fact, PharmGKB users no longer need an account to view or download any data, and we will no longer ask users to create accounts.

For any questions or comments, please send email to feedback.